In July of 2017, I visited the Brown/McFarland home for The Journal Times to photograph a family with a fourth-grade son affected by Plasious-Merzbacher disease, a rare genetic disorder similar to muscular dystrophy. Keshaun uses a wheelchair, and his mother, Nakreisha McFarland, and his three siblings try to give him the best life possible.


I made these images over the course of three visits to the McFarland/Brown home for a story that ran in The Journal Times online and in print.

Nakreisha adjusts Keshaun's legs in his wheelchair.

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Nakreisha pushes Kehsaun down the sidewalk in his specially designed wheelchair. Nakreisha takes Keshaun out of the house every day to get fresh air.

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Nakreisha helps Keshaun turn over. Keshaun's back begins to ache if he stays in one position for too long, and he must be turned regularly.

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John adjusts Keshaun in his car seat before heading to a family barbecue.

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Keshaun's sister, Kamiah McFarland, sits with Keshaun during the barbecue. Keshaun lies on a fold-out bed above the grass so he doesn't have to make direct contact with the hard ground.

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John gives Keshaun a break from his fold-out bed on the ground and swings him back and forth.

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Keshaun reaches from his fold-out bed to touch his brother Kayden.

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Keshaun's mother and siblings help him sing karaoke to one of his favorite songs from the movie Finding Dory.

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"Give me some kisses!" Nakreisha exclaims as Keshaun wraps his arm around her.

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